Disabled
groups press agenda
Mar. 10, 2003
ERIKA
ROSENBERG
O-D Albany bureau
As
a half-dozen people in wheelchairs rolled into a second-floor
office of the state Capitol, the receptionist behind
the desk stiffened.
"Do
you think you could move back into the hallway? It's
a little crowded," she said to activists from Rochester
and New York City here to protest policies of Gov. George
Pataki.
"We're
fine," said Bruce Darling, a leader of the group,
whose members insisted upon a meeting with a Pataki
administration official.
"Mark
will meet with you, but he can't meet with you right
now," said the receptionist, who would not give
her name. "You're giving me a hard time. You're
trying to intimidate me. We went through this last year."
Then,
the protesters turned up their volume. "What do
you want?" they shouted. "A meeting. When
do you want it? Now."
Within
20 minutes, the protesters got what they came for --
a meeting with Mark Kissinger from Pataki's staff.
That
story has played out several times over the past two
years, as disabled people have banded together with
people with AIDS and mental illness and used confrontational
tactics rare in Albany.
The
unusually tight coalition has won not only attention
to its causes but also legislative victories, securing
a new program to help disabled people work without losing
their government health benefits, for example.
Now,
members of the groups are angry that their successes
seem to be slipping away. The start of the new health
program has been delayed indefinitely. Pataki proposed
changes they say would weaken a law the groups successfully
pushed for in 2002 to get more disabled people out of
institutions and into homes and apartments.
And,
in what many take as a particular affront, Pataki wants
to cut cash benefits to about 600,000 disabled and elderly
people to save $26 million toward closing an $11.5 billion
budget deficit.
Utica's
Resource Center for Independent Living Executive Director
Burt Danovitz said he isn't concerned about the agency's
funding as much as he is concerned about funding for
people with disabilities.
"Taking
away money from people with supplemental security income
is one of the worst budget proposals I can imagine,"
Danovitz said. "This just has to be reversed."
Most
of the people who use RCIL's services are living below
poverty level and can't afford additional cuts.
"The
disability community feels under attack," said
Michael Kink, organizer for Housing Works, which serves
people with AIDS and HIV. "They're taking money
away from our folks, not providing health-care security
and weakening plans to get people of nursing homes and
adult homes."
So
the groups, some of whose members have been arrested
in past protests, are preparing for an active spring.
"I
don't think this community will allow this to be much
more delayed," said Harvey Rosenthal, head of a
mental-health group, referring to the new health program.
"If it's not up by (June), I think all hell will
break loose."
Before
2000, the groups for people with AIDS, the mentally
ill and the disabled worked separately on their issues.
That
year, the organizations realized they had a common interest
in seeing the Medicaid government health-insurance program
expanded to allow disabled people to pay premiums to
keep their insurance even if they worked full-time and
exceeded the program's income limits, an effort called
"Medicaid buy-in."
So
they started working together. One of the first big
events was a protest outside Pataki's offices on the
second floor of the Capitol. Some 100 people attended,
and several were arrested for chaining themselves to
the door, guarded by state troopers, to Pataki's inner
sanctum.
"At
the door were people with psychiatric disabilities chained
to people with AIDS chained to people in wheelchairs,"
Kink said.
It
took more work over the next 18 months, but the groups
won the buy-in program in January 2002.
Kink
said the confrontation in the Capitol was crucial to
the eventual victory.
"At
that point we weren't getting listened to," he
said. Civil disobedience is "about making the people
who think they have all the power and make all the decisions
recognize that they can't exclude people."
But
those tactics aren't embraced by all the groups. Two
have a long history of public protest: Housing Works,
an outgrowth of the aggressive AIDS group ACT-UP, and
ADAPT, a national disability-rights organization with
an especially active Rochester chapter of more than
100 members.
Lawmakers
say the groups have been successful but are mixed on
their use of civil disobedience.
"They're
particularly effective in pressing very hard-nose, pragmatic
arguments," said Sen. Raymond Meier, R-Western,
Oneida County. They stress, for example, that getting
disabled people out of institutions is not only humane
but also cost-effective for the state, he said.
"I
think civil disobedience really detracts from their
arguments," Meier said. "They had my attention"
before the protests.
But
Assemblyman Kevin Cahill, D-Kingston, Ulster County,
sees it differently.
"The
disobedience came when people were confronted with improper
resistance," such as shutting off Capitol elevators,
Cahill said.
"For
a group that doesn't have a lot of money to give in
campaign contributions and isn't able to grease the
skids in the traditional way, we've gotten a lot done,"
he added.
Contributing:
Mary Christopher, Observer-Dispatch
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