Walkers
to help fight MS
Apr. 5, 2003
KATE
STEVENSON
Observer-Dispatch
Multiple
sclerosis is a disease that people rally against, whether
it be through fund-raising walks or awareness campaigns,
said Sarah Fedele, the special events manager for the
National MS Society's Upstate New York chapter.
"It's
basically something that hits someone in the prime of
their life and I think people can really relate to that,"
said Fedele, one of the coordinators of fund-raising
walks taking place statewide Sunday. "People are
just starting off in their career, starting a family
and they're diagnosed with MS."
Diagnoses
of this chronic disease of the central nervous system
usually occur between the ages of 20 and 50. New Hartford
resident Traci Buffington was diagnosed about 12 years
ago, while a junior at SUNY New Paltz.
"I
started getting these symptoms I couldn't ignore,"
said Buffington, now 32. "My mouth wasn't working,
I couldn't swallow, I was drooling, choking on my drool
and then one day I just couldn't get out of bed."
Buffington's
boyfriend at the time, now her husband, persuaded her
to go to the hospital. Even after the diagnosis, she
says she didn't fully understand what was happening
to her.
"I
just thought I could take medicine and be done with
it," Buffington said. "It's definitely not
going away. It's just getting worse."
About
9,000 walkers are expected at 20 walk sites across Upstate
New York Sunday, all with the goal of raising money
to support research, health services and advocacy, Fedele
said. Funds will be raised through pledges.
Last
year, the Utica-area walk alone raised about $26,000
and this year that goal is up to $40,000, Fedele said.
Statewide last year, walkers raised more than $900,000,
she added.
"This
year our goal is a million-dollar walk," Fedele
said. "I think that's definitely attainable."
Buffington
said her family plans to attend the walk, but said she'll
probably just be a cheerleader because walking is sometimes
nearly impossible, and fatigue hits often. The worst
symptoms, she says, are bladder and bowel incontinence,
which limits her ability to leave the house.
"Until
about five years ago, if you looked at me you would
never know there was something wrong with me,"
Buffington said. "Now, it's painfully obvious there's
something wrong with me. I'm still a young person but
I feel like an old lady, physically."
Her
husband, Andrew, said dealing with the diagnosis at
such a young age was extremely difficult.
"You're
just not equipped for anything like that when you're
that young," he said. "You're just a stupid
college kid, trying to figure out who you are. My first
reaction was, 'Should I run?' But I love her, so I obviously
didn't."
For
more information, or to register to walk, call (800)
FIGHT-MS or visit www.msupstateny.org.
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